Increasing Transplant Waitlists
Quality Improvement Activity (QIA)

Network Task Lead: Kou Kha-Moua

Kidney transplantation offers advantages over dialysis for most End-Stage Renal Disease (ESRD) patients in both quality of life and survival. In spite of the benefits of kidney transplantation, according to the United States Renal Data System (USRDS), in 2016, 87.3 percent of all incident cases began renal replacement therapy with hemodialysis, 9.7 percent started with peritoneal dialysis, and just 2.8 percent received a preemptive kidney transplant. In addition, 63.1 percent of all prevalent ESRD cases were receiving hemodialysis therapy, 7.0 percent were being treated with peritoneal dialysis, and 29.6 percent had a functioning kidney transplant.¹ 

Quality Insights Renal Network 4 will assist participating facilities as they guide eligible patients through the 5-step transplant process leading to getting patients on the transplant waitlist:²
 

1. Patient interest in transplant
2. Referral call to transplant center
3. First visit to transplant center
4. Transplant center work up
5. On waiting list or evaluate potential living donor

Monthly Reporting Tool 

The Network will contact selected facilities and send a link on a monthly basis. 

Presentations & Materials

• QIA Kick-Off Presentation Slides
• Opportunities in Transplantation: Discard of Deceased Donor Kidneys in the US (video recording; PDF slides)

Toolkit

• Quality Improvement Videos
  • Quality Improvement in Healthcare (11:08 Minutes)
  • Root Cause Analysis – Process to Identify Areas for Quality Improvement
    • What is a Fishbone Diagram? (3:08 Minutes)
    • Root Cause Analysis: 5 Whys (4:44 Minutes)
  • PDSA Cycles – Process to Achieve Quality Improvement (6:21 Minutes)
• PDSA Tool
• Patient Evaluation Form ​
• Stitches of Hope Quilt
  • ​Letter - Coming Soon
  • Poster
  • Patient Participation Form
  • Patient Testimonial
• Quality Insight Renal Network 4 Patient Testimonials
• Quality Insights Renal Network 4: Transplantation
• Network 4 Transplant Centers
• The Road to Transplant: Tri-Fold Brochure (English / Spanish)
• Talk About Transplant: A Pocket Guide for Providers
• Understanding Challenges: A Guide to Understanding the Challenges of a Kidney Transplant Evaluation and Workup 
• 5-Diamond Patient Safety Program Transplant Module
• PREPARED and TALK Materials  
  • These tools are designed to help patients make decisions about treatment options for kidney diseases. The video and book are designed to help patients make decisions about treatment options for kidney disease. They were developed with grant support from the National Institutes of Health National Institute of Diabetes and Digestive and Kidney Diseases and the Informed Medical Decisions Foundation. The TALK video and book were designed by faculty at the Johns Hopkins School of Medicine and the leaders from the National Kidney Foundation of Maryland. They were developed with grant support from the Health Resources and Services Administration.
• Articles of Interest
  • Impact of Navigators on the Completion of Steps in the Kidney Transplant Process: A Randomized, Controlled Trial
  • Opportunities for Shared Decision Making in Kidney Transplantation
• Conditions for Coverage
• Resources from the NCC
  • Turning Negatives into Positives: Why Transplant is a Good Idea for Me
  • The Road to Transplant: Tips to Consider if You're Thinking about Receiving a Transplant
  • "Newly Transplanted!" Certificiate Template

Organ Procurement Organizations (OPOs)

 
OPO’s in Network 4 Service Area:

Gift of Life Donor Program
Howard M. Nathan, President/CEO
401 North 3rd Street, 
Philadelphia, PA 19123
Phone: (215) 557-8090
 Fax: (215) 557-9359
https://www.donors1.org/
 
Center for Organ Recovery & Education
Susan A. Stuart, President/CEO
RIDC Park
204 Sigma Drive, 
Pittsburgh, PA 15238
Phone: (412) 963-3550
 Fax: (412) 963-3564
https://www.core.org/
 
LiveOnNY
Helen M. Irving, President/CEO
460 W. 34th Street, 
15th Floor
, New York, NY 10001
Phone: (646) 291-4444     Fax: (646) 291-4600
https://www.liveonny.org/

United Network for Organ Sharing (UNOS)
https://unos.org/

ESRD NCC Transplant QIA Learning and Action Network (LAN) Calls​

Please note that these dates are subject to change based on speaker availability. Meeting details, including registration link and call overview, to be provided prior to each call.
 

Date	Time
Tuesday, January 21	3:00 - 4:00 p.m. ET
Tuesday, March 17	3:00 - 4:00 p.m. ET
Tuesday, May 19	3:00 - 4:00 p.m. ET
Tuesday, July 21	3:00 - 4:00 p.m. ET
Tuesday, September 15	3:00 - 4:00 p.m. ET
Tuesday, November 17	3:00 - 4:00 p.m. ET

A PDF copy of the slides, recordings and continuing education opportunities are available by visiting the ESRD National Coodinating Center (NCC) QIA LAN web page. 

2019 Transplant QIA Materials

References

1. United States Renal Data System. 2018 USRDS annual data report: Epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2018

2. Sullivan C, Leon JB, Sayre SS, Marbury M, Ivers M, Pencak JA, Bodziak KA, Hricik DE, Morrison EJ, Albert JM, Navaneethan SD, Reyes CM, Sehgal AR. Impact of navigators on completion of steps in the kidney transplant process: a randomized, controlled trial. 
   https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3463214/

 

Page last updated: 12/16/19