National Data


Dialysis Facility Reports (DFRs)

The University of Michigan Kidney Epidemiology & Cost Center (UM-KECC) carries out epidemiological, clinical, medical outcomes, public policy, and economic research relating to End-Stage Renal Disease (ESRD), Chronic Kidney Disease (CKD), and organ transplantation. Annually, the Center produces the Dialysis Facility Reports, which allow dialysis providers to compare the characteristics of their facility’s patients, patterns of treatment, and patterns in transplantation, hospitalization, and mortality to local and national averages.

Beginning in 2010, the distribution of the DFRs shifted from paper-based to electronic-based, via the secure website www.dialysisreports.org.  Each facility has designated a Master Account Holder (MAH) who has the ability to access the DFRs and assign access to additional facility-level users.  For more information on accessing your facility's DFR or about MAH credentialing, please contact Tricia Phulchand at the Network office.

Dialysis Facility Compare (DFC)

The Dialysis Facility Compare website can help you compare dialysis facilities and choose the one that is right for you. If you are a patient or someone helping a patient make decisions about his or her healthcare, the DFC website can help you...

  • Locate a dialysis facility
  • Review the services and performance of facilities
  • Learn more about kidney disease and dialysis
  • Learn more about Medicare coverage of dialysis and transplantation
How to Use Dialysis Facility Compare
  1. Go to www.medicare.gov, scroll to the bottom of the page, and click on “Dialysis Facilities” (under Resource Locator column).
  2. Select a state, county, city, zip code, or name of a facility.
  3. Select the distance you would like the search to cover.
  4. Select the facilities about which you would like more information. If you select more than one facility, you will be able to compare the information on all you choose.
  5. You have the option of viewing a comparison of Quality Measures by clicking on “Compare Quality.” You can then compare the percentage of patients who receive adequate dialysis and manage anemia, as well as patient survival information.

United States Renal Data System (USRDS)

The United States Renal Data System (USRDS) is a national data system that collects, analyzes, and distributes United States ESRD demographic, cost, hospitalization, and mortality data.

Clinical Performance Measures (CPMs) & ESRD Electronic Lab Data (Elab) Collection

Since 2008, CMS has relied on the National ESRD Electronic Lab Data (Elab) collection, which provides for calculation of Network-level measures based on 100% of eligible dialysis patients. Similar to the previous CPM data collection, Elab data are collected during the 4th quarter of each year and produce measures in the clinical domains of dialysis adequacy, anemia management, nutrition, and bone management. 

United Network for Organ Sharing (UNOS)

The United Network for Organ Sharing (UNOS) collects and manages all data that pertain to the patient waiting list, organ donation and matching, and transplantation occurring on the OPTN, the nation's organ transplant network. National, regional, state, and transplant center data are available.

Organ Procurement and Transplantation Network (OPTN)

The Organ Procurement and Transplantation Network (OPTN- http://optn.transplant.hrsa.gov) is the unified transplant network established by the United States Congress under the National Organ Transplant Act (NOTA) of 1984. The act called for the network to be operated by a private, non-profit organization under the federal contract.

The OPTN is a unique public-private partnership that links all of the professionals involved in the donation and transplantation system. The primary goals of the OPTN are to:

  • increase the effectiveness and efficiency of organ sharing and equity in the national system of organ relocation, and to
  • increase the supply of donated organs available for transplantation.

Centers for Disease Control & Prevention (CDC)

The Centers for Disease Control & Prevention (CDC) provides a large volume of statistical data on a variety of public health topics, including diabetes, chronic disease indicators, immunization, and heart disease. For dialysis-specific information, visit the CDC's Healthcare Associated Infections (HAIs) in Dialysis Settings web page to learn more about infection surveillance. Also of interest are the Morbidity and Mortality Weekly Reports (MMWR) http://www.cdc.gov/mmwr.  

Government Data

The purpose of Data.gov is to increase public access to high value, machine readable datasets generated by the executive branch of the federal government. Files can be found at www.data.gov.


Page last updated: 9/9/2014